Trustees
| Mr Christopher Fitzgerald- Chairman (London) | Appointed by the board of the Macfarlane Trust |
| Mr Roger Evans (London) ** | Appointed by the board of the Macfarlane Trust |
| Mr Russell Mishcon (London) * | Appointed by the board of the Macfarlane Trust |
| Mr Alan Burgess (East Anglia) * | Appointed by the Haemophilia Society |
| Mr Adrian Melson (The Midlands) * | Appointed by the Haemophilia Society |
| Mr Philip Dolan (Glasgow) * | Appointed by the Haemophilia Society |
| Mr Stuart Fuller - Chairman Employment Affairs Committee (South East) ** | Appointed by the Haemophilia Society |
| Mrs Elizabeth Boyd - Chairman National Support Services Committee (London) * | Appointed by the Department of Health |
| Dr Vanessa Martlew - Medical Trustee (Merseyside) | Appointed by the Department of Health |
| Mr Patrick Spellman (Hertfordshire) *** | Appointed by the Department of Health |
* Member of the National Support Services Committee (NSSC)
** Member of the Employment Affairs Committee (EAC)
*** Member of both standing committees
The Trustees act in a voluntary and honorary capacity. Overall policy is created and monitored through 4 formal meetings each year plus extraordinary meetings if required. In addition, the Trustees support and direct the staff through regular contact and correspondence plus committee meetings and telephone conferences as needed.