Giving assistance to haemophiliacs infected with HIV through contaminated
blood products and their families in the United Kingdom

The Macfarlane Trust (MFT) was set up in 1988 by the British Government to support people with haemophilia who were infected with HIV as a result of contaminated NHS blood products, and their spouses, parents, children and dependants. During the late 1970s and early 1980s more than 1,200 people with haemophilia were infected with HIV through their clotting factor treatment. A large proportion of people were also infected with Hepatitis C.

MFT currently receives approximately £2.2 million each year from the Department of Health. The majority of this funding is spent on discretionary regular payments to those who were infected ("primary beneficiaries") and to bereaved spouses/partners. There is also a small annual grants budget, and MFT is also able to refer beneficiaries for specialist benefits and money management/debt advice.

Infected blood:  Government Response to Consultation on Reform of Financial and Other Support

On 13th July 2016 in Parliament David Cameron announced the Government’s response to the consultation on Infected blood: Reform of Financial and Other Support.  A copy of the Government’s response can be found by following this link:

 Further information will follow about the enhanced payments in due course. In the meantime, please be reassured that payments to all beneficiaries will continue at their current levels.

Chair of the Macfarlane Trust

Roger Evans has stepped down as Chairman and Trustee of the Macfarlane Trust with effect from 23 May 2016.  Roger had been a Trustee since January 2007, and had been Chairman since April 2012.  The board would like to thank Roger for all his hard work during his time with MFT, and wish him all the very best for the future.

Following Roger’s departure, the board has appointed Alasdair Murray as his successor.  Alasdair has been a Trustee since February 2014.  Alasdair currently works as a Senior Adviser at Quiller Consultants and has a background in public policy, having started his career as a journalist working for The Times.

Department of Health Consultation - Infected blood: reform of financial and other support

On 21 January 2016, the Under Secretary of State for Public Health, Jane Ellison MP, announced the launch of a consultation on reform of the existing financial and other support to those infected with HIV and Hepatitis C as a result of contaminated blood.  You can read and download a copy of the document from the Department of Health website here.

On 28 January 2016 we wrote to all MFT beneficiaries summarising the proposals in the consultation, and outlining our understanding of how the proposed changes will affect the financial and other support MFT beneficiaries receive if the proposals go ahead.  You can read and download a copy of the letter here and a copy of the summary here.

The consultation on the proposed changes closes on 15 April 2016.  We would encourage all beneficiaries to respond to the document, whether you support the proposals or oppose them, so that the Government hears from as many people as possible.

The Macfarlane Trust    Alliance House    12 Caxton Street    London    SW1H 0QS
Registered Charity Number 298863    Information Commissioners Office Registration Number Z986535X